Monday, April 27, 2009

2009 April 27

Last Thursday was an early morning start getting all the barium sulphate down my throat by 9H30 and before that I had to have my blood drawn and ECG done. Then the CT scan which has shown that the lesions are still the same size as a month ago. For the last two weeks I have been battling with a cold and a really bad cough so opted to give this last chemo round a miss. The sister at the chemo rooms said that I will feel really shitty after the chemo with my body already trying to fight the cold virus. I suppose my subconscious already had made the decision three weeks ago when I asked Dr J whether that session should not be my last chemo round. So besides the nagging cough I am looking forward to feeling normal again. I cannot begin to explain what it feels like to have normal energy levels – you feel like a new person who is alive for the first time where every morning is a lovely happy beautiful new day.

Sunday, April 5, 2009

2nd last round Patupilone

The scan of just over a week ago showed that the lesions have decreased by 1mm. Not much and in discussion with Dr J last Thursday he said that he did not think the lesions would get any smaller as they are basically as small as a normal lymph gland is and we are dealing with scar tissue. So the medical opinion is that the lesions seem to be just scar tissue and all we are dealing with now is microscopic cancer. Meaning the medical doctors actually don’t know where the little cancer cells are hiding away. Based on this I have made the decision to have only one more round of Patipulone on 23 April. This is the same day that the clinical trials unit are planning for me to have CT Scans and tumour markers too. So, it is a good day to end it all – Have everything done on one day… It is going to be a marathon day!!! The last chemo round has left me feeling really fatigued and not too nauseas. Lots of rest has been the order of the day. We will see what the future holds as I remain under the watchful eye of the clinical trial.